I have to thank God for today. I am feeling quite good. I am not in pain and can eat pretty well. I even went to Loblaws earlier in the week to walk around when there weren’t too many other shoppers around. I almost felt normal. Unfortunately, I’m afraid this may just be a honeymoon phase.
Earlier this week, I went to the hospital for my weekly appointment. The doctor told me that at or around Day+60, they’re going to do a blood test and a bone marrow biopsy to see if the transplant got rid of my leukemia. Needless to say, I’m totally freaked out. The results of these tests mean so much to me. But all I can do now is to stay calm and wait for the tests and the results. There’s nothing else that I can do. I try not to think about it. I just hope for the best.
While I was at the hospital, I bumped into a lady that had her transplant almost 2 years ago. She’s doing pretty well, but for some extremely dry eyes. There were 2 other patients there that I met at a patient get-together last fall. One of them was in extreme pain, but I didn’t ask what it was. And the other patient was in a wheelchair and was breathing from an oxygen tank. He was clearly very sick. Later, I saw him being wheeled into an ambulance. I pray that he is ok.
I talked to the lady who had her transplant almost 2 years ago. She told me that at 3-6 months, when the doctors stop my immunosuppressant medication, the risk of GVHD is very high. So, I could get a whole bunch of very painful and serious illnesses at this time, like pneumonia, shingles, skin rashes, mouth ulcers, etc. Hearing this really scared me. Here I am, feeling pretty good, and then she tells me I’m pretty much in the calm before the storm. Crap! I know that I may not get everything, or anything at all, but chances are, I’ll get something. I just pray that it will be mild.
After that appointment at the hospital, I had a lot of things to digest. And it seems like my journey is not getting any easier. It’s very difficult to see other patients doing poorly. It affects me and makes me very sad. But I know I need to stay positive. It’s very hard but I try my best.
The most important thing right now is that my test at Day+60 shows no leukemia left in my body. I will deal with everything else one day at a time. Dear Lord, please help me stay strong through this journey and help restore me to good health.