I’ve been trying to write this post for the past week but my wi-fi was so unsteady that I just gave up, until today.
Can you believe it? It’s already Day+84! Day+100 will be here soon.
I have some good news to report today. My “60-day” bone marrow aspiration indicated no evidence of leukemia! In addition, my “60-day” PCR test results indicated PCRU, meaning that using the most sensitive test for CML available, they were unable to detect any CML in my blood! I am very happy and I truly thank the Lord for bringing me to this point.
Despite the very good news, the tough journey ain’t over yet. I’m still not out of the woods, so to speak. There’s always the chance of relapse, but I’m not going to think about that. I can’t live being afraid of “what if’s”. Apart from relapse, there’s still a lot of things I need to conquer.
Last week, I was hit with what the doctors and I think is GVHD of the mouth. Symptoms included, but not limited to, extremely dry mouth, painful blisters on the sides and top of my tongue, swollen taste buds, and almost total loss of my taste sensation. So, what does this all mean? It’s 2 steps back for me in terms of my taste sensation and eating. All of the progress I’ve made during the past several months in respect of my taste sensation is gone – I can’t taste a single thing anymore. I am losing weight again, cause it’s too painful to eat and everything tastes like crap. It even hurts to talk. I am soooooo PISSED!!! I was so hoping to be able to taste again, but now I am at square one. Truly sucks! OK, OK, I tell myself it’s another hurdle I must overcome and the most important thing is that I am cancer-free. OK, then I come back into perspective and I tell myself I will conquer this.
This post is kinda weird, kinda rambling if you ask me. Oh, well…
A shout-out to Helen Williams, who just recently underwent a mini-transplant also for CML. She lives in the UK and reads my blog sometimes! A shout-out to Michelle and the ladies on bmtsupport.org. Sorry I disappeared from the chat room this past Tuesday! My wi-fi was so unstable, it cut me off. I think I’ve given up trying to get into the chat room until I have a real computer (as opposed to my iPad).
And finally, a shout-out to Fr. Bill and St. Luke’s Parish -their support and prayers continue to keep me strong and faithful. Thank you!!!