Happy New Year! I wish everyone a happy and healthy 2014!
As promised, I was busy eating throughout the holidays, with a little shopping thrown into the mix. Just very happy to be able to do normal stuff.
Last hospital visit was Dec 31. Blood results looked good; doctor was happy. The doctor scheduled the long-awaited PCR test for Jan 15. This test will tell us how well the current medication is working or not. I’d be totally lying if I told you I am not anxious right now. But I’ve been on this journey long enough now that I’ve learnt to deal with the stress of waiting.
Recent victories: I can eat like a horse. My previous passions are coming back – makeup, clothes, handbags, shoes, shopping in general LOL! My doggies love me again ^_^! I dream of going on vacation and going back to work. I can go to gatherings if I am careful. My red blood cell counts are holding pretty well so I am needing blood transfusions less and less frequently.
Recent setbacks: My right eyebrow is falling out again (yup, just the right side). My hairline is receding like man’s (so weird). I have an infection at the exit site of my Hickman line (with oozing blood and pus, so gross). My nails have still not recovered from the chemo/radiation/transplant – they are still soft and easily torn, the surface is full of ridges and bumps and they are still discoloured. I can’t read near, like I have presbyopia, but the doc says it might be swelling in the eyeballs due to my meds or it might be transplant-related or I’m just getting old. I’ll be seeing an opthamologist at the hospital for that soon.
Small victories = very happy
Minor setbacks = I can deal with it