My apologies for not posting earlier…I got my PCR test results a few weeks back and I remain UNDETECTABLE for CML. I am currently being weaned off my meds for post-herpetic neuralgia (shingles pain) and so far, so good. My bloods remain stable and low, all as expected. I’m also currently trying to manage my medication side effects, which are mainly fluid retention and extremely dry skin at the moment. Of course, chronic fatigue is always an issue.
My doc felt some lumps and bumps on my body during my last exam, which resulted in me getting one diagnostic test after another, culminating in a breast biopsy. Man, did that hurt! My whole arm continued to hurt for a whole week afterwards. My doc is extremely careful with me, ordering diagnostic tests all the time, as my chances of getting other cancers are higher than the normal population, after what I’ve gone through. So better safe than sorry is the motto. Oh, the results came back negative but I was instructed to keep an eye on it.
I just found out the sad news of the passing of a fellow patient today. She had CML like me. She had her transplant one month after I had mine. She fought hard against GVHD and many, many infections, one after another. We encouraged each other to stay strong during the toughest of times. RIP, H.W., RIP. You will be dearly missed.