Day+637 (1 yr, 8 mos, 28 days)

I looked at my last post and realized that I hadn’t posted since August of 2014!  My bad, my REALLY bad.  I know I had some people worried.  My apologies.  Rest assured that I am doing well.  I am dealing with some “other” stuff right now, and that’s why I’ve neglected to post here, but physically, I am doing well.

My last PCR test was done in December and I am still undetectable for CML cells.  Yay!  That means I am still in remission.  However, I am still on Gleevec, a targeted cancer drug, to make sure I remain in remission.  Just hope it continues to work and doesn’t cause any detrimental side effects!

I am still having issues with my blood count – they are still abnormally low, but the doc assures me that this is to be expected and may continue for some time, perhaps forever.  Therefore, extreme and sudden fatigue is still an issue.  I am still having issues with some kind of autoimmune reaction in my body that’s attacking my facial skin.  And we still don’t know if it is some kind of allergy or gvhd or whatever it may be.

As for hospital appointments and blood tests – I have regularly scheduled appointments with my hematologist/oncologist once every three months, but in reality, I see him probably every month, due to one unforeseen medical problem or another.

All in all, I am grateful for where I am right now.  Someone asked me a while back if I was recovered 100%.  Well, not to be rude, but I kinda laughed, cause I don’t think it’s possible to be 100% after a stem cell transplant.  Much damage has been done, which is irreversible.  But that’s ok.  Transplant survivors learn to live with their new selves, whether it be 20%, 50% or 80% of their former selves.  I know I am one of the luckier ones and I am grateful for that.

I am thinking that I might stop posting on this blog when I reach my 2nd re-birthday, which is April 24, 2015.  I thought it would be a good time to close this chapter of my life.  The docs told me that if I should still be alive 2 years after my transplant, my chances of survival would increase to 80-90%.  Whoohoo!  That’s infinitely better than the 40% survival rate they quoted me before my transplant!

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